Faces Of Ataxia
This week, Darcy Downing shares her story of her EA2 diagnosis and how she’s coping with it. My name is Darcy Marie. I have a diagnosis of Episodic Ataxia type2. It took me 9 years to receive a diagnosis and yet my diagnosis hasn’t been proven. I still have all the symptoms of what seems […]
Maggie d’Entremont shares her story of having a rare disorder – even among Ataxians – called ARCA1. I’ve been diagnosed with Ataxia for @ 2-1/2 years. I’m currently fighting against the effects of Ataxia. As far back as I can remember, I had always been battling with clumsiness. Although growing up in Toronto, Canada, I […]
Meet Darrin Rein. He was diagnosed in 2018 and as yet doesn’t know what type of SCA he has.